We got a letter in the mail last week Tuesday stating that Dr Franks (Khloe's cleft lip/palate doc) has decided to close his practice as of Feb 21. I called them Wed morning to see what we needed to do. We had her surgery set for Thursday, March 18th. Mary Jo, Dr Franks nurse, said that there is only 1 other doc in Iowa that does this kind of surgery, Dr Canady, and he is in Iowa City. She said that her and Dr Franks will be having a conference call with the doctor during the week and will get things all set up for us. She said that they are doing everything by priority but that she would call us the week of Feb 1 and let us know what is going on. They called this morning and said that we have an appointment in Iowa City, Monday, Feb 15th at 9am. Mary Jo said that she is close to the top because of her age. They do not want us to introduce foods before surgery as she will need to go without foods/bottle for 2 weeks after surgery. So they want to get going on surgery before she gets too much older.
Dr Young's office, ENT, called last week Wed and said that since we cannot do both surgeries at the same time anymore, that they would like to do their surgery on Feb 8th at Mercy. They will put tubes in and see if they can repair anything that is damaged and causing her hearing loss. We have to be at Mercy at 6am on Monday. We are anxious to see if they can help her hearing at all.
She had her follow-up appointment with her heart doc last week Friday. They did an EKG and chest x-rays which is the normal routine. The doc came in and said that he needed to do an ultrasound on her heart right away as the x-rays show an enlarged heart. We took her right into the ultrasound room. Thee doc came back in later and said that her thymus is enlarged and not her heart. The thymus is a gland that is in front of the heart,he said. He asked us to tell her doc when we go see him on Monday. We went to see Dr Frost on Monday for her 4 month well-child check-up and a pre-op. We told him about it and he did blood work and chest x-ray to see what, if anything, was going on. They called today and said all is fine. Yeah!
Khloe also went for a check-up at Methodist for her hearing aids on Friday. She got a newer upgraded hearing aid that just came in. They were talking to us about the BEAR test that will need to be repeated soon but will wait til at least after her tubes are in and maybe wait til after her cleft is repaired. They said that they used to put some meds in the babies bottles to have them go to sleep. Well, the new anesthesiologist that just started, will not do it that way as he has not worked with it before and doesn't feel comfortable. So they were telling us that Khloe will be put under regular anesthetic during her BEAR testing this time. Lenny was a bit worried about her going under for her ears, then for the BEAR test and then for her lip. That will be all in a 1-2 month period.
We got a letter in the mail today from "Job's Daughter Hike' AKA 'The HIKE Fund, Inc'. They held a fundraiser in Khloes name and they said they had raised enough money to pay for Khloes hearing aids. PTL!!!!! They want to have a presentation for us to receive the check which will go right to Blank Childrens Hospital. They asked us if they could have media and newspaper there for the event. We are not sure on the date yet. We are so thankful for this organization! They will pay for future molds for her ears, check-ups and any other items that are needed for her hearing aids, as well. We were shocked to hear that they held a fundraiser in her name. God is GOOD!!
We will update on Monday again after surgery to let you know if they could help her with her hearing. Lenny or I will be updating Facebook and Twitter (Sassmangang)during surgery. Please pray that they will be able to help her, if even just a little bit with her hearing.
To let everyone know, our Cousin, had their little girl, Tirzah last week. She is amazing! Her cleft lip is only on one side and it doesn't even affect her nose. It goes about 1/2 way up on the one side. I do not think it even affected her gums. She DOES NOT have a cleft palate. She is beautiful!!!! My understanding is that they will come back to the states for her surgery, but possibly only 1 surgery for her. Yet another miracle!!
We will post more on Monday!!!! Thank you!!!!!!
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