We got a call from the doctor office this morning and the in-depth amnio results came back. It shows that all 43 chromosomes that were tested came back as normal. PTL!!!!! We were soo happy! No, this doesn't mean that all is fine, it means is that she doesn't have anything else wrong with her besides what they found in the ultrasound. They told us that with what she has wrong, it usually means, they will have a lot more wrong with them. Well, God showed them! God is already working miracles!!! We are anxious to go back to the doctor on Tuesday as Lenny said that he has tons of questions for him. Was it really a bubble they saw, or was it a shadow? How can these tests come back good but they are saying she has a neural tube defect? How bad is her cleft lip? If the bubble is there, is there brain tissue in it? We have tons more questions and we are praying that they can answer them all for us next week. We are just seeing God working in her and us and praying for a miracle. We are praying that God heals her totally! There are days I just want to cry and go hide in a shell but then there are days that I can get up and conquer the world and know that God is in control, not me. I think I pray 24/7. This has brought me so much closer to God. At first I was bitter with God and life and everything. But God has put so many verses in my mind daily! I was really bitter earlier this week and that day I got something in the mail from our homeschooling (NICHE). In it they were talking about bitterness.(Gee, thanks God! He knew I needed it) In the story, it said, "Learn not to take things personally, but give hurts and disappointments to God. We must realize that bitterness seems to be directed at people, but it is ultimately toward God." It also said in there, "God allows trials to come into our lives to make us better, but satan fights to get us to become bitter." Well, that was me! I was allowing satan to win. God gave me a wake up call.
We want to thank everyone for the e-mails, cards and so many words of encouragement! You will never know what that means to us. We have started a book for this little girl, so she can see how many people were praying for her and thinking of her! If God decides to take her home, it will be wonderful to look back and see how many people were there for us and praying for her/us! THANK YOU!!!!
We go back Tuesday, we will update again, when we get back. Again, THANK YOU for all your encouraging words!!!!!!!!!
Thursday, May 28, 2009
Friday, May 22, 2009
Our Baby Girl Needs Prayer!!
Well, I am not sure how to start....... We have found out some news this past Monday that has really shaken us up. We went to the doc for a regular check-up and then we were off to the specialist in DSM for a level 2 ultrasound. They said that since I am over 35, we just needed to get a ultrasound from a specialist to make sure all was ok. Well, the doc appt in Newton went great and I was getting nervous for the other one. We got there and we were able to see the baby. All looked great. She (yes, it is a girl) was kicking her feet and arms, I was mesmerized. Daddy was excited to hear those words, "It's a girl." During the ultrasound, they were pointing to different things and there was something that kept coming up, but the tech would never say what it was. I finally asked "What is this bubble that I keep seeing?" The tech said, "I am not sure but I am taking a lot of pics of it.It looks like it is on her neck." She then got done doing the ultrasound and left the room to get the doc. We had to wait for an hour for him as he was at the hospital delivering a baby. Once he finally came in, he did another ultrasound and then proceeded to tell us that the baby has a bubble on the back of her head. He said that it looks like the back of her head has an opening and then the bubble covers it. He was not able to see if there was brain tissue in the bubble but he said that he was almost sure there was brain damage. He said that if there is brain tissue in the bubble, then she only has a 21% chance of survival. She also has a bilateral cleft lip. He immediately wanted to do an amnio and prepped me for it right there. Needless to say that was painful and I found out later that they usually give you a shot first to numb you but he didn't want to take the time for that. (Lenny said that that might have helped him keep feeling in his hands during the process.)
We do not know why God has allowed our little girl to have so many problems. We feel like God is really testing us right now. I am asking for EVERYONE to pray for our little girl. We are praying for healing for her but if God decides not to heal her, then we are asking that He just allows her to live. We do not care if she has brain damage or a cleft lip. We will do whatever it takes for her. We love her already and we will feel proud that God thought we could handle a "special" child. We are just asking for prayer. We want her to live. Again, we are asking for healing, for a miracle, but if God doesn't give us that, we are praying for her to live. We are praying that we do not have to give her up to God already, but God knows better than us. We have our ups and downs.
The doctors have also told us that with this problem she has, they usually have many other problems. They did 2 testings with the amnio. They did a fast one and a in depth one. We got the fast one back saying that she is 100% a girl and that 6 out of the 43 chromosomes that they tested are normal. She also doesn't have Downs or Spina Bifida. So, we have gotten a little good news. We will get the rest of the test results on the other 37 chromosomes this coming week.
We go back June 2nd for another round of ultrasounds (3D) and see what else is going on. They are not allowing us to doctor in Newton anymore. We have to go to Mercy for doctoring now. We are praying that they do not see brain tissue in her bubble. We do not care about a cleft lip or anything else, we just want our baby to live! Please pray with us that God will heal her! I know that some day I will see her in heaven if God calls her home. But it will be so hard if we do lose her. We love her so much! Brady calls her his "rock star sister".
We are asking for you to keep our baby in your prayers. This is a emotional roller coaster ride for all of us. Please pray for her! We will keep updating this as we get news. You can also comment us or e-mail us at slsassman@iowatelecom.net . Please put us on your prayer chain at your church. Our baby girl needs prayer! Help us lift her up in prayer!!!!! You can pass this web site on to others for prayer as well!!!!!
We do not know why God has allowed our little girl to have so many problems. We feel like God is really testing us right now. I am asking for EVERYONE to pray for our little girl. We are praying for healing for her but if God decides not to heal her, then we are asking that He just allows her to live. We do not care if she has brain damage or a cleft lip. We will do whatever it takes for her. We love her already and we will feel proud that God thought we could handle a "special" child. We are just asking for prayer. We want her to live. Again, we are asking for healing, for a miracle, but if God doesn't give us that, we are praying for her to live. We are praying that we do not have to give her up to God already, but God knows better than us. We have our ups and downs.
The doctors have also told us that with this problem she has, they usually have many other problems. They did 2 testings with the amnio. They did a fast one and a in depth one. We got the fast one back saying that she is 100% a girl and that 6 out of the 43 chromosomes that they tested are normal. She also doesn't have Downs or Spina Bifida. So, we have gotten a little good news. We will get the rest of the test results on the other 37 chromosomes this coming week.
We go back June 2nd for another round of ultrasounds (3D) and see what else is going on. They are not allowing us to doctor in Newton anymore. We have to go to Mercy for doctoring now. We are praying that they do not see brain tissue in her bubble. We do not care about a cleft lip or anything else, we just want our baby to live! Please pray with us that God will heal her! I know that some day I will see her in heaven if God calls her home. But it will be so hard if we do lose her. We love her so much! Brady calls her his "rock star sister".
We are asking for you to keep our baby in your prayers. This is a emotional roller coaster ride for all of us. Please pray for her! We will keep updating this as we get news. You can also comment us or e-mail us at slsassman@iowatelecom.net . Please put us on your prayer chain at your church. Our baby girl needs prayer! Help us lift her up in prayer!!!!! You can pass this web site on to others for prayer as well!!!!!
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